Hi all. What a few weeks. For once where to begin? As many of you are all aware I was expecting my MRI results on Tuesday. However, Bank Holiday Monday we went out with friends and I had my first ever seizure in 7 years and ended up in an ambulance and taken to hospital. Ive never been in an ambulance either! I had 5 seizures in total, was very sick – not nice!! I remained conscious throughout, and I will be forever grateful to my friends, especially Liz and Tim, followed by a 4 day stay in Southmead. Got home Thursday followed by an appointment with Dr Herbert same evening. It would seem that I have significant swelling where the tumour is on the front left where the wee fecker just won’t die.
I was very well looked after and I still am by my family. These recent events have left me fairly shaken and I am very tired with most of my energy being in the mornings and I am still dealing with daily headaches which vary in degrees of intensity. When in hospital they put me on Keppra which is an anti-seizure medication and dexamethasone (steroids) which help manage the brain swelling so hopefully I am being protected from two different angles. I havent had any further seizures since Bank Holiday Monday which is 3 weeks ago today so hopefully this is positive.
When I met Dr Herbert he said that there was a new tumour just below the big one which he could treat with Gamma Knife which happened at the beginning of September (bring it on!!) I had a planning scan and the treatment went well as far as we can tell at the moment and when I asked how the big one was looking he replied to be honest it looks like it has shrunk a little bit more which I was not expecting but was a welcome update. I will have a follow up scan in 3 months to see how things are going and hopefully it will be positive news. I fight so hard to live everyday and I feel incredibly lucky to have seen my granddaughter start primary school, and am excited to see my second grandchild (first grandson) with the next few weeks.
I am currently off work on sick leave and to be honest it is very needed as its taking me a little time to bounce back from all of this. Work have been so supportive and I am listening to them and my body (for once!!) I am starting to get a wee bit bored so I must be getting better!
Despite everything that has happened over the past 18 months, it has been very difficult and I have been in a dark place from time to time but my belief is that this is not the end. I do not have that sinking feeling in my tummy or feeling of doom and gloom. I’d be a liar if I said I wasn’t scared. I have lived with secondary breast cancer for 7 years – but my time is not up and I will keep fighting on for years to come.
Fast forward to recent scan and result we never wanted to hear, there are no treatment options left but still don’t believe this is the end and i will continue to fight as long as I have strength in me!0
I am a brain Cancer fighter/survivor.
My Journey with Breast Cancer 